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β™₯Musings of a human and of the doll that runs her life.β™₯


Which Hogwarts house will you be sorted into?

CSF Ehlers-Danlos Syndrome Colloquium-Dr. Clair Francomano from csfinfo on Vimeo.

Going on an adventure! Who else gets her exercise at the mall? πŸ‘œ #mallrat #feedingtube #gastroparesis #dysautonomia #ehlersdanlos #mitochondrialdisease #juvenilearthritis #letsdothisthang (at Westfarms)

Going on an adventure! Who else gets her exercise at the mall? πŸ‘œ #mallrat #feedingtube #gastroparesis #dysautonomia #ehlersdanlos #mitochondrialdisease #juvenilearthritis #letsdothisthang (at Westfarms)

3 days ago
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This #angelicpretty skirt is seriously one of the most beautiful pieces of clothing I’ve ever seen. #gothiclolita #lolitafashion

This #angelicpretty skirt is seriously one of the most beautiful pieces of clothing I’ve ever seen. #gothiclolita #lolitafashion

4 weeks ago
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On July 23, 2014 I got my first #NJtube I can’t believe I’ve had a #feedingtube for a year now. #gastroparesis #dysphagia #dysautonomia #ehlersdanlos #mitochondrialdisease

On July 23, 2014 I got my first #NJtube I can’t believe I’ve had a #feedingtube for a year now. #gastroparesis #dysphagia #dysautonomia #ehlersdanlos #mitochondrialdisease

4 weeks ago
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Shadow of a Pork ⭐️ #miniaturedachshund #piebald

Shadow of a Pork ⭐️ #miniaturedachshund #piebald

4 weeks ago
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I haven’t been selfie worthy in a while so here you go! πŸŒ·πŸπŸ™‹

I haven’t been selfie worthy in a while so here you go! πŸŒ·πŸπŸ™‹

1 month ago
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"But guys, can’t we just talk it out? Maybe sing a couple of songs? Oh don’t hurt me!"
#feedingtube #tubie #vivonex #peptamen I call this “Impeaching Peptamen”…I’ve had the Peptamen AF for eleven months and it was my miracle but it’s become clear I no longer tolerate it. Hopefully it’s not forever and only because of my small bowel inflammation and not also worsening motility.

"But guys, can’t we just talk it out? Maybe sing a couple of songs? Oh don’t hurt me!"
#feedingtube #tubie #vivonex #peptamen I call this “Impeaching Peptamen”…I’ve had the Peptamen AF for eleven months and it was my miracle but it’s become clear I no longer tolerate it. Hopefully it’s not forever and only because of my small bowel inflammation and not also worsening motility.

1 month ago
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#Netflix added more episodes so I can finally catch up on #PrettyLittleLiars #PLL

#Netflix added more episodes so I can finally catch up on #PrettyLittleLiars #PLL

1 month ago
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@bunnynohoogle #jbunnydesigns #giveaway

@bunnynohoogle #jbunnydesigns #giveaway

2 months ago
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#instacollage @covergirl This #LashExact mascara may be my new #HolyGrail mascara! I don’t look for volume; I mostly look for length and definition. This #mascara has it. πŸŽ€

#instacollage @covergirl This #LashExact mascara may be my new #HolyGrail mascara! I don’t look for volume; I mostly look for length and definition. This #mascara has it. πŸŽ€

1 week ago
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#linecamera Happy 2nd Anniversary to one of the most fabulous person I’ve ever met. @calictii thank you so much for the love and kindness you’ve shown me. We’ve gotten through some hard things together…you help me lighten my burden πŸŽ€πŸŒΉ #lovewillfindaway

#linecamera Happy 2nd Anniversary to one of the most fabulous person I’ve ever met. @calictii thank you so much for the love and kindness you’ve shown me. We’ve gotten through some hard things together…you help me lighten my burden πŸŽ€πŸŒΉ #lovewillfindaway

4 weeks ago
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Shadow of a Fritz ⭐️ #miniaturedachshund #piebald

Shadow of a Fritz ⭐️ #miniaturedachshund #piebald

4 weeks ago
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BUZZ OFF WEEDWACKERS! I’m trying to watch #Supernatural πŸ‘» #quitbuggingme #gobothersomeoneelse

1 month ago
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#linecamera Is this not the cutest #Ty #HelloKitty you’ve ever seen??? πŸŒΊπŸŽ΅πŸ’–

#linecamera Is this not the cutest #Ty #HelloKitty you’ve ever seen??? πŸŒΊπŸŽ΅πŸ’–

1 month ago
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#linecamera #toofaced #nicestems #elf #customcompact #covergirl #clumpcrusher #rimmel #scandaleyes #makeup #eyeshadow #eyeliner #mascara

#linecamera #toofaced #nicestems #elf #customcompact #covergirl #clumpcrusher #rimmel #scandaleyes #makeup #eyeshadow #eyeliner #mascara

1 month ago
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#linecamera I’m now the proud new host to a Mic-Key #GJtube #feedingtube #gastroparesis #dysphagia #hellokitty πŸŒ·πŸ’œπŸΆ

#linecamera I’m now the proud new host to a Mic-Key #GJtube #feedingtube #gastroparesis #dysphagia #hellokitty πŸŒ·πŸ’œπŸΆ

1 month ago
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