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β™₯Musings of a human and of the doll that runs her life.β™₯


Which Hogwarts house will you be sorted into?

CSF Ehlers-Danlos Syndrome Colloquium-Dr. Clair Francomano from csfinfo on Vimeo.

When the going gets tough, the tough buy tiny makeup at 3am #makeup #sephora #benefitcosmetics #bareesscentuals #gastroparesis @benefitcosmetics @bareesscentuals @sephora

When the going gets tough, the tough buy tiny makeup at 3am #makeup #sephora #benefitcosmetics #bareesscentuals #gastroparesis @benefitcosmetics @bareesscentuals @sephora

2 weeks ago
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I am so proud of the progress I’ve made and the art I can now create since @hospitalgirl passed away. I think Corynna would be happy to see it. πŸŽ€ My #visionimpairment and #essentialtremor mean I have to practice looks and concepts more and I poke myself in the eye A LOT, but it’s days like today where I feel the most beautiful. #couragefromcorynna #mitochondrialdisease #makeup #disability @revlon @urbandecaycosmetics @benefitcosmetics @makeupforeverofficial @milanicosmetics @covergirl @freshbeauty @maybelline

I am so proud of the progress I’ve made and the art I can now create since @hospitalgirl passed away. I think Corynna would be happy to see it. πŸŽ€ My #visionimpairment and #essentialtremor mean I have to practice looks and concepts more and I poke myself in the eye A LOT, but it’s days like today where I feel the most beautiful. #couragefromcorynna #mitochondrialdisease #makeup #disability @revlon @urbandecaycosmetics @benefitcosmetics @makeupforeverofficial @milanicosmetics @covergirl @freshbeauty @maybelline

3 weeks ago
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Going on an adventure! Who else gets her exercise at the mall? πŸ‘œ #mallrat #feedingtube #gastroparesis #dysautonomia #ehlersdanlos #mitochondrialdisease #juvenilearthritis #letsdothisthang (at Westfarms)

Going on an adventure! Who else gets her exercise at the mall? πŸ‘œ #mallrat #feedingtube #gastroparesis #dysautonomia #ehlersdanlos #mitochondrialdisease #juvenilearthritis #letsdothisthang (at Westfarms)

1 month ago
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This #angelicpretty skirt is seriously one of the most beautiful pieces of clothing I’ve ever seen. #gothiclolita #lolitafashion

This #angelicpretty skirt is seriously one of the most beautiful pieces of clothing I’ve ever seen. #gothiclolita #lolitafashion

1 month ago
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On July 23, 2014 I got my first #NJtube I can’t believe I’ve had a #feedingtube for a year now. #gastroparesis #dysphagia #dysautonomia #ehlersdanlos #mitochondrialdisease

On July 23, 2014 I got my first #NJtube I can’t believe I’ve had a #feedingtube for a year now. #gastroparesis #dysphagia #dysautonomia #ehlersdanlos #mitochondrialdisease

1 month ago
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Shadow of a Pork ⭐️ #miniaturedachshund #piebald

Shadow of a Pork ⭐️ #miniaturedachshund #piebald

2 months ago
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I haven’t been selfie worthy in a while so here you go! πŸŒ·πŸπŸ™‹

I haven’t been selfie worthy in a while so here you go! πŸŒ·πŸπŸ™‹

2 months ago
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"But guys, can’t we just talk it out? Maybe sing a couple of songs? Oh don’t hurt me!"
#feedingtube #tubie #vivonex #peptamen I call this “Impeaching Peptamen”…I’ve had the Peptamen AF for eleven months and it was my miracle but it’s become clear I no longer tolerate it. Hopefully it’s not forever and only because of my small bowel inflammation and not also worsening motility.

"But guys, can’t we just talk it out? Maybe sing a couple of songs? Oh don’t hurt me!"
#feedingtube #tubie #vivonex #peptamen I call this “Impeaching Peptamen”…I’ve had the Peptamen AF for eleven months and it was my miracle but it’s become clear I no longer tolerate it. Hopefully it’s not forever and only because of my small bowel inflammation and not also worsening motility.

2 months ago
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Everyone needs a #Gizmo in their life. 🐢🎢 #bassethound #mybassetisdumberthanyours

Everyone needs a #Gizmo in their life. 🐢🎢 #bassethound #mybassetisdumberthanyours

3 weeks ago
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Okay guys…don’t let me down. 🍬🍭 #teamnopuke #gastroparesis #feedingtube #ehlersdanlos #dysautonomia #mitochondrialdisease #farrellvalve #jollyrancher @jollyrancher #zofranismybestie

Okay guys…don’t let me down. 🍬🍭 #teamnopuke #gastroparesis #feedingtube #ehlersdanlos #dysautonomia #mitochondrialdisease #farrellvalve #jollyrancher @jollyrancher #zofranismybestie

3 weeks ago
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#instacollage @covergirl This #LashExact mascara may be my new #HolyGrail mascara! I don’t look for volume; I mostly look for length and definition. This #mascara has it. πŸŽ€

#instacollage @covergirl This #LashExact mascara may be my new #HolyGrail mascara! I don’t look for volume; I mostly look for length and definition. This #mascara has it. πŸŽ€

1 month ago
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#linecamera Happy 2nd Anniversary to one of the most fabulous person I’ve ever met. @calictii thank you so much for the love and kindness you’ve shown me. We’ve gotten through some hard things together…you help me lighten my burden πŸŽ€πŸŒΉ #lovewillfindaway

#linecamera Happy 2nd Anniversary to one of the most fabulous person I’ve ever met. @calictii thank you so much for the love and kindness you’ve shown me. We’ve gotten through some hard things together…you help me lighten my burden πŸŽ€πŸŒΉ #lovewillfindaway

1 month ago
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Shadow of a Fritz ⭐️ #miniaturedachshund #piebald

Shadow of a Fritz ⭐️ #miniaturedachshund #piebald

2 months ago
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BUZZ OFF WEEDWACKERS! I’m trying to watch #Supernatural πŸ‘» #quitbuggingme #gobothersomeoneelse

2 months ago
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#linecamera Is this not the cutest #Ty #HelloKitty you’ve ever seen??? πŸŒΊπŸŽ΅πŸ’–

#linecamera Is this not the cutest #Ty #HelloKitty you’ve ever seen??? πŸŒΊπŸŽ΅πŸ’–

2 months ago
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