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♥Musings of a human and of the doll that runs her life.♥


Which Hogwarts house will you be sorted into?

CSF Ehlers-Danlos Syndrome Colloquium-Dr. Clair Francomano from csfinfo on Vimeo.

This #angelicpretty skirt is seriously one of the most beautiful pieces of clothing I’ve ever seen. #gothiclolita #lolitafashion

This #angelicpretty skirt is seriously one of the most beautiful pieces of clothing I’ve ever seen. #gothiclolita #lolitafashion

6 days ago
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On July 23, 2014 I got my first #NJtube I can’t believe I’ve had a #feedingtube for a year now. #gastroparesis #dysphagia #dysautonomia #ehlersdanlos #mitochondrialdisease

On July 23, 2014 I got my first #NJtube I can’t believe I’ve had a #feedingtube for a year now. #gastroparesis #dysphagia #dysautonomia #ehlersdanlos #mitochondrialdisease

6 days ago
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Shadow of a Pork ⭐️ #miniaturedachshund #piebald

Shadow of a Pork ⭐️ #miniaturedachshund #piebald

1 week ago
1 note | Comment
I haven’t been selfie worthy in a while so here you go! 🌷🍍🙋

I haven’t been selfie worthy in a while so here you go! 🌷🍍🙋

3 weeks ago
1 note | Comment
"But guys, can’t we just talk it out? Maybe sing a couple of songs? Oh don’t hurt me!"
#feedingtube #tubie #vivonex #peptamen I call this “Impeaching Peptamen”…I’ve had the Peptamen AF for eleven months and it was my miracle but it’s become clear I no longer tolerate it. Hopefully it’s not forever and only because of my small bowel inflammation and not also worsening motility.

"But guys, can’t we just talk it out? Maybe sing a couple of songs? Oh don’t hurt me!"
#feedingtube #tubie #vivonex #peptamen I call this “Impeaching Peptamen”…I’ve had the Peptamen AF for eleven months and it was my miracle but it’s become clear I no longer tolerate it. Hopefully it’s not forever and only because of my small bowel inflammation and not also worsening motility.

1 month ago
1 note | Comment
#Netflix added more episodes so I can finally catch up on #PrettyLittleLiars #PLL

#Netflix added more episodes so I can finally catch up on #PrettyLittleLiars #PLL

1 month ago
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@bunnynohoogle #jbunnydesigns #giveaway

@bunnynohoogle #jbunnydesigns #giveaway

1 month ago
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Pretty Kitty 🐾 (at Zombie Task Force National Headquarters)

Pretty Kitty 🐾 (at Zombie Task Force National Headquarters)

1 month ago
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#linecamera Happy 2nd Anniversary to one of the most fabulous person I’ve ever met. @calictii thank you so much for the love and kindness you’ve shown me. We’ve gotten through some hard things together…you help me lighten my burden 🎀🌹 #lovewillfindaway

#linecamera Happy 2nd Anniversary to one of the most fabulous person I’ve ever met. @calictii thank you so much for the love and kindness you’ve shown me. We’ve gotten through some hard things together…you help me lighten my burden 🎀🌹 #lovewillfindaway

6 days ago
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Shadow of a Fritz ⭐️ #miniaturedachshund #piebald

Shadow of a Fritz ⭐️ #miniaturedachshund #piebald

1 week ago
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BUZZ OFF WEEDWACKERS! I’m trying to watch #Supernatural 👻 #quitbuggingme #gobothersomeoneelse

1 week ago
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#linecamera Is this not the cutest #Ty #HelloKitty you’ve ever seen??? 🌺🎵💖

#linecamera Is this not the cutest #Ty #HelloKitty you’ve ever seen??? 🌺🎵💖

3 weeks ago
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#linecamera #toofaced #nicestems #elf #customcompact #covergirl #clumpcrusher #rimmel #scandaleyes #makeup #eyeshadow #eyeliner #mascara

#linecamera #toofaced #nicestems #elf #customcompact #covergirl #clumpcrusher #rimmel #scandaleyes #makeup #eyeshadow #eyeliner #mascara

1 month ago
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#linecamera I’m now the proud new host to a Mic-Key #GJtube #feedingtube #gastroparesis #dysphagia #hellokitty 🌷💜🐶

#linecamera I’m now the proud new host to a Mic-Key #GJtube #feedingtube #gastroparesis #dysphagia #hellokitty 🌷💜🐶

1 month ago
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My long time friend @bunnynohoogle is having a #jumpingjellys contest to promote her Etsy store. #BJD people take note: she makes high quality miniature food! She has #ehlersdanlos like I do and is a very talented artist 🌟

My long time friend @bunnynohoogle is having a #jumpingjellys contest to promote her Etsy store. #BJD people take note: she makes high quality miniature food! She has #ehlersdanlos like I do and is a very talented artist 🌟

1 month ago
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